Huntington’s Disease (HD) is a degenerative brain disorder that results in the progressive loss of mental and physical capacities. The hereditary and complex nature of HD means that it’s not just patients, but an entire community that’s affected.
Huntington’s Disease Association Tasmania was established in 1978, incorporated in 1983, to develop educational programs and provide support for Tasmanians affected by HD.
The Association aims to assist families in coping with and understanding of the disease, all while helping these families develop a strong unified voice in the quest for quality services, dignity and respect.
What we do
Provision of dietary supplements.
Resource sharing & Special Needs support.
Education— conferences & seminars.
Referral to specialist services.
24-hour family phone support.
Lobbying Government to ensure the maintenance of services for HD families.
On March 29, 2021, Wave Life Sciences issued a press release regarding their PRECISION-HD clinical trials, which are ongoing in Australia and several other countries globally. The key information from the press release is that for both of these trials (PRECISION-HD1 and PRECISION-HD2), the treatments appear not to be working effectively.