What is Huntington’s Disease?
Who we are
The Association aims to assist families in coping with and understanding of the disease, all while helping these families develop a strong unified voice in the quest for quality services, dignity and respect.
What we do
- Quarterly newsletters.
- Resource library.
- Support groups.
- Networking.
- Fundraising.
- Provision of dietary supplements.
- Resource sharing & Special Needs support.
- Education— conferences & seminars.
- Referral to specialist services.
- 24-hour family phone support.
- Lobbying Government to ensure the maintenance of services for HD families.
How you can help
Volunteer – Donate – Join
Volunteer
Do what you can when you canThank you!
Your support is very much appreciated.Donate
Make a tax-deductible donationThank you!
Your donation is very much appreciated.
Join
Become a MemberThank you!
We welcome you to our organisation.Latest News & Events
Together we make all the difference
Huntington’s Tasmania March 2022 Newsletter
Download March 2022 Newsletter
Huntington’s Tasmania November 2021 Newsletter
Download November 2021 Newsletter
Huntington’s Tasmania May 2021 Newsletter
Download May 2021 Newsletter
Audit Report, Strategic Plan, Constitution and AGM
Audit Report 2020 AGM Report 2019/20 Strategic Plan 2020 Constitution
Youth Affected by Huntington’s Disease Study
We are currently in the process of developing a questionnaire that measures stressors for young people who are affected by Huntington's disease, and would love your support in promoting our study.
An Open Letter to the Australian Huntington’s Community – Precision-HD Trials
On March 29, 2021, Wave Life Sciences issued a press release regarding their PRECISION-HD clinical trials, which are ongoing in Australia and several other countries globally. The key information from the press release is that for both of these trials (PRECISION-HD1 and PRECISION-HD2), the treatments appear not to be working effectively.