What is Huntington’s Disease?
Huntington’s Disease (HD) is a degenerative brain disorder that results in the progressive loss of mental and physical capacities. The hereditary and complex nature of HD means that it’s not just patients, but an entire community that’s affected.
Who we are
Huntington’s Disease Association Tasmania was established in 1978, incorporated in 1983, to develop educational programs and provide support for Tasmanians affected by HD.
The Association aims to assist families in coping with and understanding of the disease, all while helping these families develop a strong unified voice in the quest for quality services, dignity and respect.
What we do
- Quarterly newsletters.
- Resource library.
- Support groups.
- Networking.
- Fundraising.
- Provision of dietary supplements.
- Resource sharing & Special Needs support.
- Education— conferences & seminars.
- Referral to specialist services.
- 24-hour family phone support.
- Lobbying Government to ensure the maintenance of services for HD families.
How you can help
Volunteer – Donate – Join
Volunteer
Do what you can when you canThank you!
Your support is very much appreciated.Donate
Make a tax-deductible donationThank you!
Your donation is very much appreciated.
Join
Become a MemberThank you!
We welcome you to our organisation.Latest News & Events
Together we make all the difference
Huntington’s Tasmania Autumn 2020 Newsletter
Download Autumn 2020 Newsletter
IMPORTANT UPDATE: Status of current HD clinical trials in Australia
In 2019, the HD community in Australia welcomed three new international clinical trials from the sponsors Wave Life Sciences and Hoffman-La Roche.
Huntington’s Tasmania Summer 2020 Newsletter
Download Summer 2020 Newsletter
The Founder Effect
Huntington’s Disease is prevalent in the Afrikaner; or Dutch-descent population.