What is Huntington’s Disease?
Who we are
The Association aims to assist families in coping with and understanding of the disease, all while helping these families develop a strong unified voice in the quest for quality services, dignity and respect.
What we do
- Quarterly newsletters.
- Resource library.
- Support groups.
- Networking.
- Fundraising.
- Provision of dietary supplements.
- Resource sharing & Special Needs support.
- Education— conferences & seminars.
- Referral to specialist services.
- 24-hour family phone support.
- Lobbying Government to ensure the maintenance of services for HD families.
How you can help
Volunteer – Donate – Join
Volunteer
Do what you can when you canThank you!
Your support is very much appreciated.Donate
Make a tax-deductible donationThank you!
Your donation is very much appreciated.
Join
Become a MemberThank you!
We welcome you to our organisation.Latest News & Events
Together we make all the difference
Audit Report, Strategic Plan, Constitution and AGM
Audit Report 2020 AGM Report 2019/20 Strategic Plan 2020 Constitution
Youth Affected by Huntington’s Disease Study
We are currently in the process of developing a questionnaire that measures stressors for young people who are affected by Huntington's disease, and would love your support in promoting our study.
An Open Letter to the Australian Huntington’s Community – Precision-HD Trials
On March 29, 2021, Wave Life Sciences issued a press release regarding their PRECISION-HD clinical trials, which are ongoing in Australia and several other countries globally. The key information from the press release is that for both of these trials (PRECISION-HD1 and PRECISION-HD2), the treatments appear not to be working effectively.
PRECISION-HD1 and PRECISION-HD2 Clinical Trials Cancelled
Dear Huntington’s disease community: We have a disappointing update to share regarding our Huntington’s disease